How special needs trusts work (with SSI/Medicaid rules)

A special needs trust holds assets for a person with disabilities so they can have financial support without losing eligibility for SSI, Medicaid, and other needs-based benefits. The trust — not the beneficiary — owns the assets, so the assets don’t count against benefit eligibility.

What is a special needs trust?

A trust designed specifically to hold assets for a person with disabilities without disqualifying them from needs-based benefits. The trust supplements government benefits, not replaces them.

What happens to the inheritance Without an SNT With an SNT
Trust owns the assets, not the beneficiary.
SSI and Medicaid eligibility generally preserved.
Trustee spends on supplemental needs.
Government benefits continue alongside.
The inheritance counts as the beneficiary’s asset.
SSI and Medicaid eligibility may be lost.
Benefits may have to be paid back.
The inheritance is spent down before benefits resume.

How does an SNT preserve SSI and Medicaid eligibility?

SSI and Medicaid have strict asset and income limits. Because the trust — not the beneficiary — owns the assets, those assets don’t count toward the limits.

The trustee uses trust funds for supplemental needs: therapy, equipment, education, travel, and the quality-of-life items government benefits don’t cover. The structure is what preserves eligibility.

What’s the difference between a first-party and third-party SNT?

A third-party SNT is funded by someone else — usually parents. A first-party SNT is funded with the beneficiary’s own assets, like a settlement.

Third-party SNT

  • Funded by parents, grandparents, others
  • Common for inheritances or life insurance
  • No Medicaid payback at the beneficiary’s death
  • Remaining assets pass to whoever you choose

First-party SNT

  • Funded with the beneficiary’s own assets
  • Common for settlements or unexpected inheritances
  • Medicaid payback required from what’s left at death
  • Subject to additional federal rules

How does an ABLE account fit alongside an SNT?

An ABLE account is a tax-advantaged savings account for people with disabilities. It works alongside an SNT — not instead of it.

What it’s designed for SNT ABLE account
Holds larger inheritances and gifts.
Designed for long-term holdings and investments.
Provides lifetime financial support.
Covers major life expenses.
Smaller, flexible day-to-day spending.
Holds the beneficiary’s own earnings up to limits.
Tax-free growth on contributions.
Direct control by the beneficiary in many cases.

How Brent helps you

  • Walks you through which SNT structure fits your family’s situation
  • Drafts a third-party SNT to receive inheritances and gifts without disrupting benefits
  • Coordinates an ABLE account alongside the SNT for day-to-day flexibility
  • Names a trustee who understands the SSI and Medicaid rules and how to follow them
Brent Helms at his office in Fairhope, Alabama.

Do you need a special needs trust?

Five quick questions to help you see whether a special needs trust fits your situation.

60-second guided check. Bring the result to your consultation.

Talk with Brent about a special needs trust that fits your loved one’s situation.